Policy Grids

     Adding a New Bill to the Federal Legislative Policy Grid

    Our federal policy grid and governance principles are designed to ensure that all legislative initiatives we support align with our mission and uphold the policy priorities of Community Congress. By focusing on broad, community-driven priorities and remaining guided by science over politics, we aim to make a meaningful and equitable impact. These guiding principles help shape our advocacy efforts and legislative asks, particularly during critical engagements like Hill Days.

      • Aligns with our mission statement
      • Falls within Community Congress priority areas
      • Serves a broad segment of the rare disease community
      • Guided by science, not politics
      • Avoids endorsing single-disease legislation
      • Legislative priorities shape our asks for Hill Days

      If you would like a new bill to be considered, please fill out the Federal Grid Questionnaire Below.

      For information on each of the bills in the lead, engage, and support categories, including contact information for external partners leading legislative efforts, check out our Legislative Reference Guide. 

         Adding a New Bill to the State Legislative Policy Grid

        Same criteria as above.

          If you want a new bill to be considered, please complete the State Grid Questionnaire Below.


          For information on each of the bills in the lead, engage, and support categories, including contact information for external partners leading legislative efforts, check out our State Reference Guide.